Fun Raising

I spent a good portion of the weekend just gone attending and speaking at a couple of breast cancer fundraisers.

On Saturday afternoon, it was a high tea to raise money for my local BreastScreen Queensland service. BreastScreen which provides women over 40 with free access to mammograms and other screening for breast cancer, with a focus on early detection. The event was a sell-out – I could claim that it was due to word getting out about the guest speaker, but apparently it was a sell-out last year and the year before too. In any case, I got to wear a dress for the first time since my wedding almost 9 years ago, eat some scones and clotted cream (and put leftover clotted cream onto a piece of chocolate slice, and eat that too, because I’m all class), and talk about myself, so there was nothing not to like about the whole event. Because it was the day before Mother’s Day, I talked about what it’s like to be diagnosed with cancer when have a young child, and parenting through treatment and beyond.

julie at high tea 1

The audience was interested and attentive, and I was enjoying myself to the point that the jazz hands came out, and I started to look a bit like a tv evangelist. Testify! And pass me the clotted cream.

julie at high tea 2

On Sunday morning, Dave, Hugh and I got up early and met some of our lovely friends to participate in the local Mother’s Day Classic walk/run. The Mother’s Day Classic is held all over Australia, with funds raised donated to the National Breast Cancer Foundation to fund research into breast cancer prevention, treatment and cure. It was a crisp, gloriously sunny morning, but there is nothing like a sea of smiling faces and pink balloons to warm the heart of someone who’s been on the receiving end of this life-saving research.

MDC 2015

As always, every important step in my life is taken with the support of my gorgeous boys (standing front and centre to watch me speak)

MDC 2015 2

and my fabulous friends wearing pink and walking by my side

MDC 2015 4

… or being carried by someone walking by my side

MDC 2015 5

I also got to meet some real life Boob in a Box readers, which was both exciting and surreal. Big shout out to Tina her mum, to whom I awarded a best fancy dress prize before I even knew they were readers!

It’s very hard to reconcile in my mind that the shittiest of shit experiences that is cancer can also bring with it some positive things. But it can and it has – I get to meet people, share my experience, help raise some money, and spread the word about diagnosis and the efforts towards a cure.

And speaking of positive things, I’ve been nominated for an award as part of Kidspot Voices of 2015, which is a celebration of Australian online creativity. I am a tiny, tiny tadpole in the enormous ocean of blogging (whose really shit at analogies because I’m not really even sure if frogs live in the ocean), so to be nominated for these awards is very special. I have no idea who nominated me, but the fact that there is even one person out there who thinks what I do here, playing around with words in my spare time, is worth such an acknowledgement has made me a very happy one-breasted, middle-aged woman.

I don’t expect to win an award, but I’m going to say my thank yous now, anyway. Thank you anonymous nominator, thank you Tina and her Mum, thank you to the beautiful lady on Saturday who showed me she was wearing a wig and told me she felt like my words were her words. Thank you to those of you who read my posts, who help inspire my posts, who comment and email and tweet. Thank you to my husband who told a stranger on an Internet forum that I am an amazing person, and to the random bloke at the walk on Sunday who said he was glad I’m still alive. And thank you cancer, you fucking bastard of a disease that I detest with every fibre of my being, for giving me these opportunities. I wish I never had them, but I’m so glad that I’ve got them.

The Reflux

Earlier this year, I was diagnosed with reflux. Every time I say or write that word, Duran Duran’s song The Reflex immediately pops into my head. They are two quite different things though. The Reflex is a door to finding treasure in the dark, whereas The Reflux is waking up choking on your own stomach acid and then sucking it into your lungs. As I said, quite different.

The Reflex is a lonely child who’s waiting by the park, whereas The Reflux is a side-effect of the medication I’m taking for the next five years to help prevent my cancer from recurring. It started when we were on holidays in Thailand last year, and I thought it was food poisoning for a while, then the Thai version of Bali belly, and finally about a month later I decided it probably wasn’t either of those things, and raised it with my oncologist. It took me a month to ask a doctor about it because if there’s one thing all cancer patients have in common, it’s the ability to put up with things that would have someone who hasn’t had cancer presenting at emergency screaming ‘For the love of god, someone help me pleeaaaassseeeeee’. Cancer people do this for two reasons. One is because we know things could always be much worse, and the other is because we don’t necessarily want to know that things might actually be much worse.

The Reflex is watching over lucky clover, isn’t that bizarre, whereas by the time I was diagnosed with The Reflux, I was at the point of being unable to drink a glass of water without chest pain so bad I thought I was in cardiac arrest. I had lost around 12kgs in the space of three months because most of the time, I was unable to eat anything substantial. I’d cook dinner for the family, sit down to a lovely meal, take two tentative mouthfuls, and ten minutes later be in agony with the burning and contracting in my oesophagus. My oncologist immediately knew what was wrong with me, so I was prescribed a drug called a proton pump inhibitor to manage the side effect of the non-steroidal aromatase inhibitor. My inhibitor is  now apparently being inhibited, and constantly having a popular song from 1984 in my head would appear to be the least of my worries.

The Reflex is a game, he’s hiding all the cards, whereas The Reflux means that because of my inhibition issues, I need to be very careful about what I eat. Lettuce, perhaps the most innocuous of vegetables,  is now my mortal enemy, as it will bring on an horrendous attack of The Reflux if ingested. Bread is bad, pasta is bad, rice is bad, cake is bad. If it weren’t for the fact that I’m pretty sure I’m not a total fuckwit, I’d be worried that I’d started turning into Paleo Pete Evans. And although my arse and thighs look markedly better minus the extra 12kg they were sporting, I still do need to be able to ingest food at regular intervals, and if I remember correctly from my primary school history lessons, scurvy doesn’t sound like much fun. Enter the Ninja.

Every little thing The Reflex does leaves me answered with a question mark, whereas The Reflux has caused me to buy myself a Nutri Ninja. As seen on TV! The Nutri Ninja with Auto-iQ takes the guesswork out of drink making! Auto-iQ Technology features intelligent programs that combine unique, timed pulsing, blending and pausing patterns that do the work for you! Rotates at high-speed to liquefy ingredients into the smoothest nutrient juices, smoothies & purees! So many exclamation marks! It must be good! And the salesperson is going to give me $40 off! That seems reasonable! Food! Without choking! Or vomitting! Or chest pain! Where do I sign! Shouldn’t that one be a question mark! And that one! Oh dear!

This morning I made myself a drink from carrots, pineapple and kale. It looked like this:

green sludge

I’m on a ride and I want to get off
But they won’t slow down the roundabout
I sold the Renoir and TV set
Don’t wanna be around when this gets out.

https://youtu.be/oDnNF5cHCdo

Seven Years a Mother

It’s seven years today since I became a mother. Here’s what I looked like just before we went to hospital. For the record, no, I was not carrying quads. I was 38 weeks pregnant with one baby who had grown to gargantuan proportions thanks to my insatiable craving for chocolate milk.

julie pregnant

At 6:52am on Friday, 2 May 2008, my boy was born and my life changed, utterly and completely, and forever.

julie and hugh just bornjulie and hugh first chat

I could talk ad nauseam about how hard it was early on, how much I struggled with the tiredness and the sameness, the lack of stimulation and quite likely a bit of undiagnosed post-natal depression, but that is truly in the dim, dark past. I could talk about how I eventually blossomed as a parent, and reminisce fondly about how I was so determined to learned the words to the Thomas the Tank Engine theme song that I sat late one night pushing play, stop, play on Hugh’s Songs of Sodor DVD until I had all the lyrics written down and could memorise them from my cheat sheet. I could talk about how worried I was until Hugh finally started walking at the grand old age of 22 months, or how amazed I was when he started to teach himself to recognise written words when he wasn’t yet four.

julie and toddler hugh

But the fact is, none of these stories or anecdotes or memories will convey to you what it feels like, to me, to be a mother. Being a mother has changed everything about me, yet made me more myself. It has worn holes in my heart, but made also made my heart bigger, more open, and much more robust. On occasion, it has broken me down to the point that I’ve felt like I’m just fibres of being flapping in the breeze, but then steadily, and without me even realising it, motherhood has built me up into a person that I didn’t know I had the capacity to be.  I never thought I would have the chance to be a mother, and when it did happen it was almost an out-of-body experience for a long while, so to be completely and utterly charmed and affected by it continues to be a shock. I am comfortable in the role – happy and fulfilled – but still regularly feel surprised that, for real, this is me.

hugh eye roll

Oh for god’s sake Mum, stop banging on about it.

It is most definitely me. Seven years on, I regularly look at this beautiful, funny, smart and tender-hearted creature and feel such pride that he’s mine. As he grows I become more aware of how Dave and I are shaping this human being, so he can grow up and take his place in the world. He’s going to be a man one day – hopefully someone’s partner, maybe someone’s dad, definitely someone’s boss.

Hugh at 7

As well as marking my seven years as a mother, today marks two years since I finished the last day of  active treatment for breast cancer. I would never recommend cancer as a way to find out about yourself – self-help books and a meditation course would certainly be cheaper and considerably less cell- and soul-destroying – but it did offer me some incredible moments of clarity. I found out that short hair really suits me, and perhaps a little more significantly, that being a mother is a privilege that cancer denies to many. It may still deny me parenting my child into adulthood, as I wait in the limbo land that is remission.

This stark knowledge has focussed my attention on the importance of the mundane, which is, in reality, what being Hugh’s mother is all about. I make his lunch every morning, his sandwiches cut into triangles because I know he likes them better than squares. When I am walking up the stairs in front of him, I make pretend farting noises and poke my bum out, just to see him fall about in paroxysms of laughter. I lie next to him in his bed for a few minutes each night – like you did when I was a baby Mum – and he presses himself up against me, lovingly patting my hair and raining kisses on my cheeks. I trim his nails when his piano teacher sends a note home saying they are too long for accurate ivory tinkling, and then at his request paint his fingernails and toenails alternating red and blue, his school colours. He helps me make cupcakes after dinner and then I ice them when they are finally cool enough at 10:30 on a wet Thursday night, because he wants to share them with his classmates and teacher the next morning to mark the impending milestone of his birthday.

Seven years a mother. Two years a survivor. Inextricably linked. 2 May, 2015.

holding hands

The Cancerpreneur

There’s a big cancer-related fraud that’s making headlines in Australia right now, with a woman called Belle Gibson who blogged about curing cancer via eating well (have a look here if you don’t know what I’m talking about), and it’s created quite a lot of controversy. All the media outlets which helped her pedal her complex web of lies and deceit, by accepting her wildly outrageous claims without any effort whatsoever to check even the most basic of facts, are now whipping up a frenzy of ‘how dare she’ headlines. Meanwhile, the Australian Women’s Weekly magazine is publishing an interview with this woman, where she very clearly demonstrates that she has not one iota of insight into her own behaviour or its impact on vulnerable people. Again, she is being enabled by the media to trot out tales of her twisted reality, supported by retouched images of her which one can only assume are to make us wonder how such a young and attractive woman could behave in such a wicked way.

The media has built Belle Gibson, and now they are knocking her down. The lies and deceit are all her own, but thus far it appears that not once did any of the media outlets who were telling (and selling) her story, was she questioned about the validity of her claims. Much of what she said was farcical or facile or both, yet her fame grew, her followers amassed, and her power grew. It’s the power she was given, by every journalist who gushingly accepted the information provided to them by her PR company, and editor who overlooked the outrageousness of the claims, that has enabled sick, vulnerable and misguided people to be hurt.

Cancer, in reality, is not attractive. Tumours are ugly, whether seen or unseen. They can cause your breasts to be cut off, you anus to be sewn up, or half the skin on your face to be replaced by a flap of tissue from your belly. They make your organs stop working, which makes you thin, or fat, or sallow or grey. The treatment – and by this I mean surgery and chemotherapy and radiation and stem cell transplants and hormonal therapy – is uglier still. It poisons your cells, makes your hair fall out, gives your diarrhoea or maybe makes you vomit diarrhea out your mouth, causes unmitigating bone and nerve pain, headaches, sensitivity to cold, sensitivity to heat, burns you, makes you barren, brings you to your knees and then takes them out from under you.

All this ugliness is not really what the media wants to hear about. That it’s the truth of cancer and how cancer is best treated, is irrelevant. That cancer makes you look sick, and that the treatment makes you look even sicker before it can begin to make you look better, is not going to make the front cover of a glossy magazine. Tubby, one-breasted 45-year-old women with burn scars and post-menopausal slack skin don’t become media darlings, with thousands of followers hanging off every word – I find it best to eat my porridge at 10am, because that’s when the reflux meds kick in and I can risk eating without revisiting my breakfast for the remainder of the day – is not the sort of morning mantra that’s going to cut it with the Instagram devotees, when much of society seems obsessed with beauty and youth and demands, absolutely demands, simple answers to really fucking complicated questions. As abhorrent as Belle Gibson’s behaviour has been,  rather than questioning why she did what she did, I think we need to question how she was able to get away with it in the first place.

The State We’re In

On the weekend, we went to a food festival. We love food, and we love a festival, so it’s an ideal way to spend a couple of hours on a Sunday in our regional city. As we walked towards the festival, my son spied a make-shift sign directing us to the entry. He read the sign, then stopped dead in his tracks, looked at me wide-eyed with worry and said ‘Islamic Food Festival? We can’t go in there, Mummy, they are our mortal enemies!’

He’s a six-year-old with a passion for Star Wars, so I wasn’t surprised by his turn of phrase, but absolutely horrified by the context in which he used it. In fact, the shock of his words took my breath away. I bent down and asked him what he meant – ‘I saw on the news about Islamic State, Mum. They’re going to kill everyone.’ I explained, as best I could whilst kneeling down in front of the doors of the venue with people walking by, that ‘Islamic’ and ‘Islamic State’ are two vastly different things, that Islam is a religion and that the festival was all about celebrating the food and culture of the wide variety of people who are Islamic.

He was relieved by my answer, and was happy to continue into the festival. We first did a reconnoitre of all the food stalls to see what was on offer – Bangladeshi pakoras, Indian curries and chicken from the tandoor, Iraqi tagines, Indonesian satay and rendang, Turkish delight and baklava and Bosnian lamb cufte – and then each decided on what we’d have. The stall holders were all so proud of their food, and were happy to share with Dave some rendang and some tandoori chicken, Hugh some chicken satays and baklava, and me some pakoras followed by Turkish delight. The venue, a gymnasium which had been hastily set up to host the festival, was packed with people, so in between courses we were joined by another family, which included a young mum and a couple of toddlers. I gave up my seat so she could sit and feed her children, but I was only standing for a few seconds before a stranger brought me over a chair, gave me a big smile, and urged me to be comfortable.

Once we’d eaten, we spent a few minutes watching some people observing midday prayers, before we ventured outside to explore the jumping castle, the henna artistry, and the police community liaison information stand, which is a usual presence at all local community and sporting events. There were quite a few police there interacting with excited kids urging them to turn on the siren and then all shrieking and laughing at the noise, but no doubt there were many more officers in attendance at the crime scene just down the road, where the local mosque had been seriously damaged by arson two days before.

When I first heard the news of the fire, I’d felt a mixture of anger and shame that such an act had occurred (and for the second time) in my city. That such violent and destructive intolerance had been acted out in this community, in the dead of night in such a cowardly way, made me so sad and disheartened. I continued to feel angry, sad and ashamed, right up until my son expressed his fear to me outside that food festival. I realised then and there, that his fear, like the fear of those who attack, both in words and actions, the Muslim community, is based on ignorance and misunderstanding. People post hateful vitriol online, and verbally attack others in the streets and on public transport, and set fire to places of worship, because to them Islam is an unknown, and therefore to be feared. My son is only six years old, and so his lack of knowledge is understandable (although, for me as his parent, regrettable), but these other people – the haters, attackers and arsonists – are adults who choose to remain ignorant. They choose to continue to believe that Islamic State represents all of Islam, that extremist Muslims speak for all members of that faith, and that therefore their ignorance and hatred is justifiable. It is not, and will never will be, in any society which considers itself open and democratic.

Since the food festival, I have had a couple of conversations with my boy, about freedom and tolerance and acceptance. We’ve talked about how what we see on our television – whether it is footage of murderous terrorists in far-flung places or arsonists burning mosques only a few kilometres from our home – must not be accepted as our reality. Reality is walking out into the world, shaking people’s hands, sharing food, offering a seat, listening to stories, learning. The world is sometimes a shocking place, but as a parent I am determined to ensure that my beautiful boy has every opportunity to understand that our reality is the one we build, not the one we imagine.

The Afterthought

1969 was a massive year in human history, as on July 20 Neil Armstrong became the first person to set foot on the moon, uttering the immortal words ‘That’s one small step for man, one giant leap for mankind’. My mother was 35 weeks pregnant with me at the time, and I imagine she was taking lots of small steps, most of them in the direction of the toilet, as she suffered with something called hyperemesis gravidarum (constant, untreatable nausea, vomiting and dehydration) throughout the entire pregnancy. She was still vomiting in the car on the way to the hospital, madly driven by my aunt through red lights because I was Mum’s third baby and she’d decided to stay at home until serious labour started, which turned out to be a bit difficult to judge with any accuracy. I was born less than an hour after she arrived at the maternity ward, whereupon the vomiting stopped and I imagine my mother lit up one of her customary cigarettes and mentally high-fived herself for giving birth to a nine pound baby despite having eaten nothing except lemons and aniseed balls for the preceding 40 weeks.

Mum and Dad only ever intended to have two kids (well to be perfectly frank I think both of those were accidents too but let’s not get too caught up in details), but when my brothers were 10 and 9, she went to the doctor because she felt so crap, and said to the doctor that if she didn’t know any better, she’d say she was pregnant [insert my mother’s high-pitched nervous laugh here]. The good doctor decided that it would be best to check, so blood was taken and sent away (no peeing on a magic stick back in ’69) and lo and behold, a couple of weeks later my mother found out that she was indeed pregnant with what my grandmother always referred to as the family’s ‘afterthought’. Because I was the precious youngest grandchild, feted and fawned over by my brothers and cousins, I always felt that being the ‘afterthought’ was pretty special, and so wore the title with flamboyant pride. You could take your eldests, your middles, your twins and your favourites; I was the afterthought, and nothing short of another accidental pregnancy whilst using contraception could take that away from me. And fortunately for me, and my mother, I remained the only afterthought of that generation.

I think my status as the much-loved afterthought has played a significant part in me having what can only be described as excellent self-esteem. I’m now 45, one-breasted, greying, with thunder thighs and reflux, but now, perhaps more than ever, I can see very clearly what I have to offer the world. I love to talk, and I love to write, and I love to do both about myself. So over the coming four weeks, I have three breast cancer-related public speaking gigs and a sponsored post for the Cancer Council. I’ll be talking and writing about how cancer has affected my life, how sometimes adversity breeds a little bit of beauty in amongst all the darkness, and how it’s the little steps, taken every day by researchers, that will enable us to make the giant leap towards finding a cure for cancer.

If you are interested in the events I’m speaking at, you can find more information here about the Mother’s Day Classic Walk/Run (they’re being held all over Australia so get your arse out of bed and your feet on the pavement on May 10) and here about the I Believe in Pink High Tea (which is being held in Toowoomba on May 9). I am also going to be walking (slowly, and probably puffing a bit on the hills) in the Mother’s Day Classic, so if you would like to sponsor me (all donations go directly to cancer research), you can find my sponsorship page here. I’m also going to be writing soon about the work of the Cancer Council, so stay tuned.

Here’s me doing a happy dance in anticipation of your support. Dance monkey, dance.

julie happy

The Last Hurrah

The Boob’s blogging birthday has been a beauty! Thank you for reading along. I hope I’ll still be here, and still blogging, in another year’s time.

This post is one of my personal favourites – bloody hard to write, but to my own mind and heart, these words remain very true. This post was about The Gift of Now.

mastectomy cake

 

Fading Scars

It wouldn’t be a birthday party without someone lifting up their top and showing us their tits. Or in this case, the place where the tit used to be. This post from the archives doesn’t leave anything to the imagination, so if you’re squeamish it might be best if you click away now and go and look at pictures of kittens on Pinterest. If not, come on in and have a look at my Scars.

mastectomy cake

And Still We Wait

Boob in a Box is still out on the turps celebrating the one year blogging anniversary. It’s amazing how many tequila slammers a prosthetic breast can knock over during happy hour. So here’s another post from the deep, dark recesses of 2014 – it’s a follow-on to yesterday’s post, about waiting for the wait to be over – The Wait’s End.

mastectomy cake

Right Here Waiting

Because a birthday should be celebrated for longer than just one day, here’s another flashback to one of my earlier posts. This one is about one of the main ways in which cancer can torture you – the constant fucking waiting. Almost a year down the track and I’m not required to do as much waiting, because I don’t have so many medical appointments. But there’s still the invisible, but heavy drag of the endless marking of time – The Weight of the Wait.

mastectomy cake